So as some of you know I had a CRTD fitted in September. I felt marvellous after it and quickly focussed on moving on with my life.
Move forward to beg of March and ( due to my leads being put in too tightly.. Dr admitted this) one of the leads... left ventricle.... fell out.
Back to the operating table ( last Thursday)to have another lead inserted. Was told this would be a new type of lead.... with a hook attachment... which shoukd stay in better. So 3 days after op it has come out!!! And I have been super cautious.
Was told at A & E of this today.
Now if they try again ..... this is yet more chance of getting an infection.... which could lead to open heart surgery!
As I felt the last op they said any future op would be under General anaesthetic.. .. another rid.
And I could go through the whole thing for it to just fall out again!!!!
OR I could get that lead switched off get the other lead to only pace when I get down to 40 beats a minute ( and this would effectively then become an ICD device with the added protection of the defibrillator.
Pros: no further surgery as we could just fine tune my device
Allows me to get on with life and I will be protected if my heart speeds up or goes to slow
Will negate any worries of further complications and would ensure no open heart surgery
An ICD offers protection but would not halt any further deteriorisation. Although this may not deteriorate at any great speed.
I will not have the same energy levels as I have with the CRT and would therefore recognise I would get a little more tired (although I was not struggling with life without it) just take the stairs a little slower.
Accept maybe a change in lifestyle to protect my heart to avoid deteriorisation. ( slow down a bit)
I really am struggling with this one. But I am so scared of keep going with further ops that don't work...
I am considering telling them I don't want any further treatment and let's fine tune my device to be an ICD device ..... but will I regret it?
The Dr at the hospital.. . When I put this to him... was impressed I had worked out how to reconfigure my current device to become an ICD and he did say " we are making you ill... I think this sounds like a better option than another op" but when he rang my surgeon he just wants to whip.me in for another go!
I am emotionally drained and maybe an ICD gives me what I need and stops me being ill due to all this invasive treatment. Help what do others think?