Happy New Year to all my fellow Hearties. I havent been on the forum for a little while and for those who have read my previous posts will know, there were some set backs in 2018 for me.
Having had a CRT D device back in September 2017, i had a lead fall out in February 2018, having a further op to fix the lead back in, in March very quickly fell out again 2 weeks later. Having investigated all my options, and getting a highly emminent surgeon on board, we decided to go for a third attempt, and so my third op in 12 months took place in August 2018. My surgeons were non other than Dr Betts and Dr Gamble, which has always made me chuckle. And they were great, as they kept trying for 6 hours to get that pesky lead in ( I apparently have a funny shaped heart) and they did it!!!!
It has taken me longer to recover this time, but recover I have, and now with 2018 over, but with a fabulous final outcome, (the lead is in 5 months later yippeee) I now look forward to 2019 and having fun!
I was asked to contribute to an article about getting out and socialising for BHF, to help others realise that life doesnt have to stop with our diagnosis, and although yes life changes, it can also lead to discovering new and fun things to do, and how we can move forward with our new life. I am delighted to say that the article is in this month's Heart Matters magazine. And the photo shoot took place just 5 weeks after my op, and although I was still in pain at this point, to get out and have a laugh certainly helped me to get through it. The link is below,
So as some of you may remember I had booked a cruise for 2018, which I had then had to cancel, so I am now going for it, for 2019, as I need a holiday!!! and cant wait to book one for 2019, as well as other weekends away.
I have also had agreed with my company, that I will go down to a 4 day week, so I can focus more on my social life and having ME time.
So all in all, its been a challenging, scary but ultimately a great positive ending to 2018 (but boy am I glad its over !) so here's to 2019, having fun, and the new electronically powered me.
As some of you know I have named my device each time, so just to let you all know, the name I have given my third (and last!) device, is Frankie, (short for Frankenstein) as I am now powered by volts. It can also be a male or female name... of course when all is well its Frankie the female, and when Frankie is playing up or giving me any problems, its Male Frankie. Ha ha ha,
So now onwards and upwards, and having had a wonky heart and heart failure for 24 years, and now planning the next 24 years. Lots of love Karen x