Spontaneous aortic dissection

[Clairey37]

I went for my MRI yesterday to see if the myocarditis had left any damage. The consult told me afterwards that I haven’t got myocarditis but that I had spontaneous aortic dissection! As a result a small part of my heart muscle has died. Has anyone else been diagnosed with this? Apparently it’s quite rare. I would like to know what happens next in terms of medication etc x

[Hidden]

Hello Clairey - did you mean aortic dissection or spontaneous coronary artery dissection (SCAD)? They're quite different so I'd hesitate to signpost you anywhere unless you knew for sure which you'd had.

Please feel free to call our helpline if this is more helpful to you - the number is 0300 330 3311 and lines are open 9am to 5pm Monday to Friday.

Chris

[Clairey37 in reply to Hidden]

I think he called it spontaneous healing aortic dissection?

[Hidden in reply to Clairey37]

In that case it's very rare indeed! There isn't a huge amount of research out there about the condition because of this. As it's quite specialised I'd definitely recommended talking to your cardiologist about next steps.

Sorry I can't be of any more help.

[Clairey37]

I had read it was rare but thought I was maybe not looking in the right place. Thanks anyway!