Aortic Dissection - new publication

[Cliff_G]

To anyone here who has been affected by aortic dissection - whether as a patient, family or carer - the charity Aortic Dissection Awareness UK & Ireland recently published specific post-event guidance around AD. This is something that has generally been missing from the care pathways.

The new booklet is called Aortic Dissection: The Patient Guide and is available as a free pdf download. We are also rolling out free paperback copies via UK and Ireland aortic centres - whether cardiothoracic (for type As) or vascular (type Bs). Our commitment is to provide a copy to every AD patient before they leave hospital, by the end of 2022.

Read more here: aorticdissectionawareness.o...

The download details are at the foot of that news article or click here: aorticdissectionawareness.o...

We have received an enthusiastic response so far, and sincerely hope you will find it useful.

Best wishes to all

Cliff

[JulianM]

Congratulations to you and everyone who put this together. It's very clearly written, extremely practical, and great care has been taken to focus on what people will need to know, and can benefit from, at different stages on the journey to recovery after the trauma of a dissection.

I think there is something else that is needed to deal with the experience I have myself gone through, and which will face some of the relatives identified as having risk factors for aortic dissection, but who have not themselves had a dissection.

'Living with Aortic Risk' might, I hope, be the starting point for that other project: this is a very good model for what it could look like.

[Cliff_G in reply to JulianM]

Thanks, and I agree, Julian. After an echo for AF, I knew I had an enlarged aorta for 20 years but no-one properly told me the risks. If only...!

[Cliff_G in reply to Cliff_G]

JulianM , as a further thought, when I put forward the idea to ADA that we needed an AD booklet, the response was "why don't you do one, then?", and here we are. I'm sure with your accumulated knowledge you could be valuable to a similar such team effort. Have a word with Gareth?

[witchcraft]

As someone who is four weeks into the process of recovery from AD, this little guide is brilliant

[Cliff_G]

So glad it was of help - was the whole point! We all wished we had had something like that when we dissected. And written by patients, too (fully medically checked).