Hello everyone!

I'm new here and I have never spoken about this since I live a sheltered life but I wanted to know how others cope with having Psoriasis Arthritis for a long period now?

[Greenmil3]

Hi

well done for posting. I am sure you will gt plenty of replies. Mine causes unmanageable pain during flares and really bad pain at all other times so i rely on lots of pain meds that the pain clinic cant find an alternative to and at the moment methotrexate and Leflunomide. this appears to have stopped the progression. I am now medically retired so don't do much but with a young family so it is thoroughly demoralising but I get my new wheelchair I saved up for very soon so something to look forward to. I also have brain damage from multiple small strokes over the years so thank goodness for spell check as my writing is terrible now as well.

[Hidden in reply to Greenmil3]

Hi! I'm so sorry to hear that. Aside from having PA I also have Chronic Lymphocytic Leukaemia which means I have two autoimmune diseases and the risk of getting a stroke or heart attack is my biggest fear as if avoiding infections, managing pains and fatigue wouldn't be enough to worry about. So I get anxious and I can't sleep. I can't walk either or only with extreme difficulties but since I never leave the house, I couldn't be bothered to get mobile assistance. Life looks bleak.

[Batty1]

Psoriatic Arthritis (PSA) I deal with it by injecting biologics from my rheumatologist but I still struggle on the daily with this monster living inside me.

[Hidden in reply to Batty1]

I see you are from the US. No injections in the UK as far as I am aware. 😟

[Batty1 in reply to Hidden]

Oh thats intetesting

[kenster1 in reply to Hidden]

I`m from Scotland inject myself every week with methotrexate

[Hidden in reply to kenster1]

Don't they have tablets in Scotland? I'm only joking. I wasn't aware that patients inject themselves which makes me question how you are being monitored regularly.

[kenster1 in reply to Hidden]

you can get tablets I`ve never been offered them as of yet. you get regular checks at the doctors.

[Hidden in reply to kenster1]

Interesting. They must trust you. If my bloods are bad, I'm to pause taking Methotrexate as my platelets sometimes decrease but I also have leukaemia.

[looby24 in reply to kenster1]

sorry to jump in - I have just been given injections that I'm about to start. I was also given stomach protecto tablets (diclofenac) - I'm wondering why as the methotraxate does not go via the stomach? They also gave me a glutathion, milk thistle and vitamin E supplement as well as folic acid. You?

[Ramuniux]

I have PSA and JIA, I deal with it by injecting biologics from rheumatologist. But they make my life so hard, everyday I woke up with pain and going sleep with pain.