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Beyond Psoriasis
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Psoriatic arthritis

Hi my name is Kevin I’ve just been diagnosed with psoriatic arthritis but am going for a second opinion..I’ve been having problems with my ankle ligaments on my right foot for 3 years now am having problems on my Achilles and heel on my left foot literally every step hurts .. Yes I have psoriasis but very little patch on my stomach .. I went to see my rheumatologist and after he read my file from my podiatrist and seen I had psoriasis he said I had a clear case of psoriatic arthritis he did not even check my blood results at all.. This all happened in a space of 5 minutes now he wants me to take methotrexate starting with 4 a week.. I looked up this drug and have watched people’s stories about them and I have yet to find a good results of anyone that doesn’t have a side affect of them.. Am a young man I eat healthy and live a healthy lifestyle so this come as a shock not only that nobody in my family has ever had this .. Can anyone give me any advice and piece of mind please and if this is the case and I have to go down this road what sort of life do I expect to have .. thanks

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Google "borax and arthritis". I used borax to put my PA into remission for years. There is tons of information about it on the web.

Art

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Ok thank you

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Is that just having it on it’s own or with medication tho?

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No medication, just borax. Google it.

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I’ve had PSa since 2001 when I was 33. I took metho for the first 8/9 years pretty successfully with very limited side effects. I also have almost no psoriasis apart from small patches when I was a teenager. Even now I don’t have any. A good rheumatologist will be able to diagnose from how your joints present so although I recommend a second opinion it may well be the same result. I fought my diagnosis for a long time so I understand your shock and horror. The good thing is you are young. You say you have healthy lifestyle so you are already helping yourself a great deal. The drugs available are now really varied and when you find one that suits you can put you in to remission. I know people who have little to no symptoms 10/20 years on. Read up on everything ask questions and don’t listen too much to miracle cures🙄. I’ve been told everything from turmeric and black pepper to hemp oil will help. Sometimes it does and you take that forward with you. Hope that helps.

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Also we have a really helpful psa Facebook page.

Psoriatic arthritis uk group. There is about 1200 people who are really helpful and supportive

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Thanks for the reply i really needed some good feed back.. Also you said for this first 8 or 9 years it was successful can I ask how your lifestyle is now are you able to do the things you want to do.. Because I travel the world a lot and tho now I have to get blood tests every two weeks for 3 months which I don’t mind it’s the blood test every month after which is annoying because I could be away different places a month or two at a time and feel now I just don’t have that freedom of just getting up and going

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I think when I was diagnosed I felt like a fish on a hook😳. I didn’t want to engage with the process and I didn’t want to do bloods or appts or anything. Denial is an amazing thing but didn’t help me st all. We all deal with things in different ways but the sooner you accept and engage with the processes the better it will be for you and your disease. I was also a director for a games company travelling a lot and had to be on top of my game. Realistically pushing myself hard for 10 years didn’t do me any favours! I wish I had dialled it back a bit as I ended up with all sorts of issues including 4 other auto immune diseases. So I’m not a success story health wise but I am “special”. Most people react well to drugs and I have been in biologics that have made me normal and able to do most things. This is an individual journey and it can be incredibly different for each person but it’s not a death sentence and learning to manage is probably the most important lesson. 🤞🤞for you.

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Didn't do blood tests? There isn't one for psoriatic arthritis.

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Yes that’s what I found out from my rheumatologist on the day I got diagnosed ...so don’t know why the other doctors were taking blood test for arthritis

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They were probably trying to identify or eliminate those types of arthritis for which there are blood tests.

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Hi Kevycarey

Blood test are not going to show psoriatic arthritis it's pretty much a symptom diagnoises looking at nail involvement and xrays. I have had Psoriatic Arthritis in both of my Achilles tendons now for 2.5 yrs and like you walking is excruciating and yes I have psoriasis but this psoriatic arthritis flare has now invaded my knees and I see no sign of it stopping....Im on Cosentyx and its made my skin look awesome it hasnt done a darn thing for my tendons...

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And have you not tried methotrexate? I got a steroid injection into my Achilles which had worked great but for the heel pain i can feel it creeping back in

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Hi Kevy

Steroid injections in or near tendons should be avoided at all cost (per my psoriatic arthritis specialist at John Hopkins university Rheumatology). I was seeing a orthopedic doctor who wanted to inject steroid into my heel and my Rheumotologist freaked out ...she said reason is you could weaken the tendon overtime by injecting steroids and what hurts now could be disaster later....so I never did steroid injection.

I never did methotrexate but I never had tendon issues until I lost my thyroid to cancer in 2016 which brought on this nightmare of pain prior to thyroidectomy I had mod to severe psoriasis 80-90% covered so I was put on Stelara for skin of course over my years with psoriasis (45yrs) worth I'm 49 now.

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I was diagnosed with Psoriatic arthritis in 2012, I was glad to finally have an diagnosis, Not that I was happy to have this horrible disease,but glad to know what it was. I have pain all over, most of my joints are effected, and even on the meds,I did not take MTX, I had an allergic reaction to it. I do take a biologic Orencia infusion, and have tried so many more. The orencia was helping for awhile,but since my TKR, it hasn't worked. I have been in an awful flare and seems it want pass anytime soon. My rheumatologist has uped my plaquenil, so maybe that will help I am hopeful. I am so sorry you are dealing with the pain. But just research as much as possible, and be an advocate for yourself. Ask many questions ... Praying for all of us, and hoping you find relief and can still do all the things you want to do! I push myself to be able to do the things I love, hanging out with my grandchildren, gardening, going on vacations,being involved in my church through different ministries. I rest when I can.

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Don’t take methotrexate. It won’t help and very bad side effects. Just take care of your diet, stress and digestion. Fruit vegetables. Avoid gluten, starch and lácteos.

Search about gut help in internet

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