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Beyond Psoriasis
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working with this nightmare Psoriatic Arthritis

Hello all hope we are doing not too bad,

just to find out if anyone has trouble working, I have worked as a chef for the past twenty years,except up until over a year ago.

I have not worked since and have made various attempts to go back part time, but have not been able to as i have lots of trouble with my ankles,wrists,fingers,and back, and when you work as a chef there is a lot of standing involved and using your hands.

i am really not coping without money, which is having a big effect on my well being, I am currently on jobseekers allowance, the job centre are of no help at all, and still expect me to work as a chef, while i really do think i should be retraining to do something else.

if anyone has any advice i would be very grateful, really dont know where to turn to or ask for advice.

cheers all and take care James

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I work as a carer its very difficult and painful..i live on zapain every 4 hours whilst at work..and i work on a 4 on 4 off rota as everyday would be too much..its agony to work but who pays the bills if you dont..its a vicious circle..iv applied for pip been turned down before so we will see..i have psoratic arthritus with chronically high inflammatory markers..osteo arthritus..asthma..tinnitus..its a struggle i feel your pain.

But you are better to keep moving if you can..x

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Hi Eileen,

must be very difficult working in agony all the time, i feel your pain, it cant be nice.

i have tried some painkillers but they dont really do anything for me, i currently take tramadol,and am on sulfasalazine from the hospital.

i totally agree i do my best to keep moving, as if i stop i think i would give up.

do the zapain help at all, i have never heard of them?

I hope you get some rest after your work, all the best and thank you for your response,

James x

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Please google borax and arthritis. I found that most sites discuss RA and OA, but not PA. Well it worked for my PA and has kept it in remission for a decade!

Art

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oh cheers i will do, thank you

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Zapain are like a strong co codamol..i take methotrexate for joints....take it easy james..hopefully it will get better soon..x

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I work full time in a bank (probably because I’m too stubborn to reduce hours). It’s painful and have just started Otezla which plays havoc with my stomach. I’m on pregablin too. It’s hard but I feel if I stopped or reduced my hours I’d get worse quicker . Hope you find something soon xxx

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Thanks for your response Sarah, yeah it is difficult, im getting in touch with a disability advisor soon so i will see what they say. have a great weekend james x

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Hi James. Don’t forget whatever job you get to get occupational health involved to make sure you have the support you need to do the best you can without compromising yourself xx

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Hi Sarah, that is a very good point one which I will use, I think there is a lot of help out there if you look for it, I always do things off my own back but sometimes i do think i need a little help sometimes, thanks again

James x

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Hi, Modjim, I am sorry, You need to contact S.C.A.R.T. or Citizens Advice, You cannot live without money, They will be able to help put you in the right direction, I am sorry for your recent experiences with all this pain, I have had this for 20 years, and all they offered me was 20-year-old drugs which did not work in the beginning, Nothing new. I hope you do contact these people they will help.

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hi jax53,

thank you for your reply, i will contact the references you mentioned, i dont really have much luck these days, seeing a disability advisor tomorrow if they are available, they seem to be never at my local job centre for some reason, sometimes i think they are mythical creatures.

They gave me sulfasalazine i think they are about 70 year old medication, i stopped taking it waste of time.

I have appointment with Rheumatology so i will see what they say,

cheers Jax, best wishes James

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I have taken those for the last 20 years, they stain your clothing and your urine,

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