If you're suffering with joint pain this could be the best £40 ever

[goodlife]

Dreamland Relaxwell Heated Chocolate Throw - Standard Size.

Argos £39.99

this is AMAZING.... even my little toe joints have stopped hurting.

Go buy yourself a slice of heaven

[bailey23]

Mmmmm.... bit late for my Christmas list but may have to treat myself!

Happy Christmas and a Happy and Healthy New Year

Hugs

Angela

[behcetshurtsbeyondwords]

Wouldn't that be a miracle if a blanket could cure all of our Behcet's pain? Not even the strongest narcotic pain meds can completely alleviate the pain that I feel-- I wish that a bit of heat and a blanket could give me my life back. I don't even remember what it feels like to not feel pain. At 25 yrs old, I have to have my food cut up for me and drink from a plastic cup like a toddler, I can't even wash my own hair anymore!

[goodlife]

Hello there, yes it would be absolutely marvellous.

I am afraid I get excited if something only eases the pain a little bit, and I am so sorry that you are experiencing this level of pain at such a young age.

I am grateful that I have almost raised my daughter who is 18 and doesnt need me in such a hands on way quite so much. However, I try and lay off the heavy stuff like the oralmorph when she's around so I'm better company.

I don't know where to start when talking about pain, Inever knew this black world existed and I have never cried with pain, even childbirth. Yet I often cry now.

On a positive note my illness started with partial paralysis down my left side and I had to use the spouted tommee tipee type cup. Then I lost my swallowing function and had to remove lots of food drom my diet and I was even choking on liquid.

I got some intensive one to one therapy from the speech and language therapy and I have been able to re-introduce some of the food I missed and don't choke very often.

It really is shit and I am going to message you to be sure that you know I feel a real connection with what you've written, and I would love to hear from you about your journey.

Lots of virtual hugs and thinking about you, love Jill xx

[behcetshurtsbeyondwords]

Thank you Jill

I feel kind of bad about the way I responded. I re-read it and realized that it came out kind of the wrong way... I was in a bad place yesterday-- mainly just frustrated by everything and feeling sorry for myself (which is something that I hate doing because I know that I am not the only person suffering).

I am very sorry that you too have to deal with the pain of bechet's-- it certainly does cause a darkened life for us that often feels like a black hole. There is no way out. I would never, ever wish this disease and its devastating effects on anyone-- nobody deserves to feel any kind of pain-- especially Behcet's pain.

I do have to admit that a cozy, heated blanket does sound like a piece of Heaven though-- it may not take the pain away or cure our nasty disease, but it is something that can make us feel a tad comforted-- espcially in the icecold dead of winter! (I live up North in Canada-- not sure where you are from and if it is cold there also?) Its s no-win situation though because in the summer my body cannot tolerate the heat which just makes the swelling and pain more unbearable; but then when its freezing icicles out, my nerves spasm constantly, adding to the pain. I guess there just is no happy median for us Behcet's people?

Lots of love and Hoping and praying for a better year ahead for all of us

Jenna

[goodlife]

jenna, don't feel bad we can all be truthful about how unbearable the pain can be in this room, we are amongst people who understand.

I never knew this world of pain existed and now it removes the colours from our days.

I have always planned to do a world tour around 2014 when my husband retires and lso I ook at Canada a lot, but I have to say the climate must be awful for BD.

Luckily so far I can handle the sun and my joint pain seems to reduce but I havent tried blistering heat yet so the jury is out....wheres the nearest town to you? I am marking spots where all my new friends are on my world map.

ANy crumb of comfort that eases the pain is worth considering, though I am lucky that I am being financially supported and I don't know your personal situation.

I can only imagine how it must feel to have this cross to bear at such a young age and I hope that you will feel comfortable to message me if you would like to chat more. My daughters are around your age so I can sort of imagine your frustrations.

Xmas and new year can be a particularly difficult time as we are all supposed to be happy and jolly and yet we miss so much....so cut yourself a little slack Jenna it's ok to say how shit it is.

Love and hugs and new year wishes Jill xx