Infusion port

[Matillymoo]

Hey all, does anyone with Behcet's have any experience with getting an infusion port (port-a-cath?) For their infusions?

I'm having infusions every 4 weeks now and the nurses would really like me to get one. I'm not needle phobic or anything but have had some bad experiences with cannulations, and after 18 months of infusions i am down to one working vein. Thinking it might be time to bring it up with the doctor but not sure how it would go with this disease. My body seems so unpredictable in how it will react to things.

I'd love to hear from anyone who has gotten a port and how it went for you - did it heal up okay? Was it worth it?

[Angusthecow1]

Yes I had to get a port a catholic as I was very difficult to get a canular in I'm still as bad now butcit was the best thing I ever done it made life much better and made getting infusions so much better getting bloods done so much easier if I had to do it all over again I would still go ahead but we r all difrent and have to do what's best for ourselves. Hope this helps a wee bit bless u kay

[Angusthecow1 in reply to Angusthecow1]

Hi so sorry about the prediction being on my phone and not reading it back its ment to saying got a portacath put in my chest . Sorry again best of luck whatever u decide