Webinar: Behçet's in children POSTPONED

[UKADMIN]

Unfortunately, due to NHS pressures, RCPCH and BPSU have taken the decision to postpone the planned RCPCH-BPSU Behcet's webinar on 18 Jan.

They apologise for any inconvenience caused and look forward to re-scheduling the webinar for later in the year.

The RCPCH and BPSU will be presenting the findings from their 2017 study into Behçet's in children and young people in January 2021.

Although the target audience is medical professionals we still recommend this webinar for any parents who have children with Behçet's.

More information about the webinar including how to register can be found here: rcpch.ac.uk/education-caree...

Information about the study can be found here: rcpch.ac.uk/bpsu-study-behc...

[MMatta7]

Hello, I was born with Bechets, 73 years ago! Of course, no one knew what it was. In fact, 5 years ago I was told, children don’t get Bechets. I can assure anyone, they do. I’m glad to see a study is being done on children. . I fall outside the parameters of your study. But, once I transfer my Baptism film to a DVD, I will send you a copy. Proof, you can be born with Bechets. In my case, even more rare, it only affects my external eyes, not my retina. Only doctor Shaffer in Boston, has addressed the problems of people with external eye disease connected to Bechets. Most doctors think it doesn’t exist. It does, and it is extremely painful, swelling, light sensitivity, blurred vision. I had many multiple mouth ulcers as a child, always sinus infections, only occasional skin rashes, on my back and inner arms, no where else. I never had genital sores, thank God. In childhood, I was sick 50% of the time. After I reached age 25, I never had the worst of the worst flares again. My eyes still swell, but nothing major.