Swollen labia

[Lucets]

So I have a question and I’m probably going to get really graphic so excuse me before I start. I had sex with my boyfriend for the first time (since the first time) in about 6 months. Before we had sex I already saw a small ulcer (wasn’t too concerned) . It’s now 2 days after and that small one has went away but my labia is swollen and it’s really painful to walk. It has swollen before but not in a long while. I’m not sure if this is Behçets related or not it’s just very swollen, no ulcers that I can tell. Has this happens to anyone else? Please help any input is welcomed.

[Stm252]

Yes this happens to me. This is usually because of my mast cell issues. There are a lot of overlaps with all these diseases. You may want to see if an antihistamine may manage this.

[Lucets in reply to Stm252]

A relief to know it’s not just myself, but still sorry that you have to go through this ( I know it’s very painful) I will look into the antihistamine thank you! ❤️

[debs1963]

if your in pain go to see your gp. it probably a flair up of ulcers and intercourse has just irritated it.

[Lucets in reply to debs1963]

Yes I think that’s what I was. I ended up soaking in a hot bath for about a week and it slowly went away. Thanks for replying!

[SCMW]

Hi, a steroid ointment like synalar would take this down. I had scarring from ulcers in this area and didn’t know. Take warm, regular baths to soothe the area too. Best wishes

[Lucets in reply to SCMW]

Thank you! That’s exactly what I did and it did the trick!

[CecilyParsley]

Thank you so much for raising this issue. I am so relieved that it is nit just me, although I am truly sorry for the pain you are in. I get a deep ache almost like a bruising before the ulceration starts and when it does my labia is so swollen it hurts to sit, walk etc. It rubs on my incontinence pads . My Rheumatologists has put everything down to “ hysteria” which is insulting and totally wrong because he has never examined me. He said my Lupus, Bechets and APS diagnoses were “ crap”. I just suffer with it. The only thing that relieves it temporarily is Instillagel syringes. If you do find anything that helps please let me know. I hope it eases for you soon xx

[Lucets in reply to CecilyParsley]

Thanks so much for responding! It is good to know that we’re not alone. I also had a doctor try to say that I didn’t have lupus and beçets disease after my first rheumatologists took over a year studying and diagnosing me. (He was eventually shut down by several other doctors, thank god) so I know your pain of someone trying to belittle your pain and overall illness. I get the same pain where it feel very bruised and dry. I have never heard of instillagel but I will definitely be looking into it (thanks for the tip!) but so far for me the only thing that helps is a warm soak in the bath tub. I hope your feeling much better these days sorry I’m so late responding

[CecilyParsley]

It is the worst discomfort and drags me down, makes me feel unclean and nothing really helps that much. I do hope that you are feeling a little better now. I am struggling badly at the moment but all we can do is fight, a day at a time. It really is good to have people who understand xx