My old rheumatologist tested me every three months for the above to see if I was still Becket active. My new rheumatologist says he doesn't understand why as it is only a test done once to determine Bechet's. Does anyone else have this test done more than once and if so, why?
Thanks!
Hi, It’s a genetic test, so the result won’t change. It’s an indicator but not a requirement to be diagnosed with Behcets. I don’t have it & im diagnosed. Hope that helps. Best wishes
Omg, now that's the funniest thing I've heard. SCMW is correct that's a genetic test. Both my daughter and I have the gene and we are both diagnosed with behcets.
Thanks for sharing
My old rheumatologist sent me along for genetic tests for Behcet's and EDS, the geneticist said that over 50% of Behcet's sufferers would not prove they had the gene and he was not prepared to do and said after doing family history there was no reason to do a test for EDS since I had clearly got this condition from my mother.
Very odd he kept getting your tested.
I was diagnosed with Bechet’s around six months ago and I asked for the test. It came back positive. Agree with the others that I thought it was a genetic test so would only need to be done once. The test took about 6-8 weeks to come back though!
My niece was diagnosed with neuro Behçet’s, she is only 5 years old, does anyone have experience with children? She had seizures and fever
Have worst time with ulcers 
Could periods be triggering my flares?
Rheumy says suspected Behçet's, but gp won't do anything!
Rheumatologist in New York
