Eye issues : Hi. My eye sight has been coming... - Behçet's UK

Behçet's UK

5,215 members4,318 posts

Eye issues

Lovingdragonflies profile image

Hi. My eye sight has been coming and going but settled on worse than my normal. My opthmalogist ran me through all of the normal tests for Behcet’s. My retinas are good. My eyes are healthy. He’s concerned it’s vasculitis of optic nerves. In addition I’ve had a whole bunch of other neuro issues. My neurologist is very concerned so I’m going in tomorrow night for several tests. Cervical, head MRI MRA MRV. I’ve never had a angiogram, I think that is what he said. Has anyone else had that. The feeling is I have a major neuro Behcet’s Flare and my rheumatologist though thinks my Behçet’s is all tickity-boo.

Written by
Lovingdragonflies profile image
Lovingdragonflies
To view profiles and participate in discussions please or .
Read more about...
3 Replies
TheHud profile image
TheHud

You know me and dye lo ;)

Be careful of dye unless you are sure you are not allergic to anything :)

I am preservative free and although I have been referred to oral for checks with dye, its not likely to happen, can't take the risk unless they have allergen free or do a test. Possibly pump me full of antihistamines first lol

Second, for 10 years 3 specialists had me down as vascular issues damaged my optic nerves, probably. No it did not, it turns out I have large optic nerves that you don't normally find in small white women. Now they are damaged because it was actually chronic uveitis causing all the mayhem with the vision, pressure and what not. So ask the questions yourself and don't be afraid to investigate, I should have because they are not all that special as specialists sometimes :)

XX

Lovingdragonflies profile image
Lovingdragonflies in reply to TheHud

It’s not the optical issues worrying g me as much as huge cognitive and personality changes. Balance issues........the vision is a worry but that is kind of just the tip of the iceberg for me. I’ve never had issues with other dyes. Thanks though for that. Good input.

Brichel profile image
Brichel

I see my eye doctor every six months as I am on the verge of having glaucoma. My eyes get blurry which is annoying too. Keep seeing your doctor and good luck.

You may also like...

Please can anyone advise on eye issues?

therapist asked if my eye was ok as it's bloodshot on part of it. I said I had noticed since I woke...

Eyes?

blood vessel in my eye! My eyes have been very sore recently but untill now have had no problems...

Update - eyes

Hi I had my results from the ophthalmology consultant this morning. The VEP and Angiogram have all

Difficulty Focusing Eyes?

it too. I have had uveitis since 2007. It started really awful, vision in one eye was almost gone

Does anyone else have stomach issues with Behcet's?

or constipation). Camera tests such as colonoscopy / OGDs are frequently normal despite symptoms,...