HELP ......: I have been suffering from Behçets... - Behçet's UK

Behçet's UK

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HELP ......

Lorrie profile image
5 Replies

I have been suffering from Behçets Disease since 2010, diagnosed 2012. Up until a year ago I had all the usual symptoms which were managable to an extent. As the autu-immune disorder has stopped removing toxins from my body it was down to the lymph system, kidneys & liver. Unfortunately I was diagnosed with lymphadynopathy & the start of liver failure. This now means that when the toxins get to a high level severe sickness & diarrhoea starts & can contine for up to a week. Does anyone else have this problem & if so know of a way to control them.

Thank you in advance to all of you for your help. I'm hoping. XXX

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Lorrie profile image
Lorrie
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5 Replies
JHardiman profile image
JHardiman

Yes-my daughter had similar symptoms for a while. Her BD started like this then was predominantly cardiovascular then involved the CNS. That's why it was so tricky to diagnose. She has adopted a vegan diet that is high in good fats which has helped a lot. Yoga & running when not having a flare up have also helped.

JHardiman profile image
JHardiman in reply toJHardiman

She also drinks a lot of water with lemon slices & has smoothies with Amazonia protein powder & almond milk & fruit when having a flare up with nausea.

Lorrie profile image
Lorrie in reply toJHardiman

Thanks for taking the time to read & reply to my post. I have increased my water intake already & will look into the protein powder idea too. Thank you.

JHardiman profile image
JHardiman in reply toLorrie

You are so welcome! This forum is so helpful😊I hope things improve soon for you

Lorrie profile image
Lorrie in reply toJHardiman

Thank you. Yes I find this forum very informative & helpful.

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