Behcet's Resources for New Members

BEHCET'S RESOURCES from Joanne Zeis

I've had Behcet's for 35+ years and have been helping other BDers since 1996 through online support groups, websites, books, and other resources. Here are some reliable sources of info for people in the U.K., U.S. and other countries:

Behcet's Syndrome Society (UK): behcets.org.uk

American Behcet's Disease Association: behcets.com

Behcet’s Disease: MyModernHealth FAQs (book) -- Table of Contents and order info

(Received 2015 U.S. National Health Information Merit Award, Patient Education): bit.ly/1VPAhZU

Behcet's Syndrome Society Fact Sheets for patients: behcets.org.uk/information-...

Behcet's Syndrome Centres of Excellence (U.K.):

London - behcets.org.uk/?page_id=409;

Liverpool - behcets.org.uk/?page_id=414;

Birmingham - behcets.org.uk/?page_id=411

The Behcet's Treatment Center in the US (New York City) has become part of the Seligman Center for Advanced Therapeutics at 246 E 20th Street:

med.nyu.edu/medicine/rheuma...

International Society for Behcet's Disease

behcetdiseasesociety.org

List of Behcet's organizations around the world:

behcetdiseasesociety.org/me...

Essential Behcet's -- a searchable blog (J Zeis): essentialbehcets.com

Discovery Health's "Mystery Diagnosis" episode about Behcet's (Joanne Zeis' 17-year search for a diagnosis):

Part 1:

Part 2:

Find a vasculitis specialist (worldwide): vasculitisfoundation.org/ma...

Find a rheumatologist (worldwide): rheumatology.org/Directorie...

Find a uveitis specialist (worldwide): uveitis.org/patients/list-o...

Uveitis.org patient education booklets/articles: uveitis.org/patients/educat...

International Society for Behcet's Disease

behcetdiseasesociety.org

Twitter feed: @jzeis

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  • Thank you that's really useful.

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