portland OR: Hi, Going through a possible behcet... - Behçet's UK

Behçet's UK

5,343 members4,369 posts

portland OR

irose profile image
4 Replies

Hi,

Going through a possible behcet's diagnosis and hoping to find a vasculitis support group in the Portland area. Let me know if anyone has any leads or lives in the area. I would be open to the possibility of starting one.

Thanks!

Written by
irose profile image
irose
To view profiles and participate in discussions please or .
4 Replies
PollySunshine profile image
PollySunshine

Hi. I'm about 200 miles north of you but I'm looking for the same thing. I too am looking at this dx, as I await an appointment at the end of January with a Rheumatologist.

How are you doing with all of this?

irose profile image
irose in reply to PollySunshine

Hi! I am getting a second opinion from a Vascular Rhuematologist at OHSU. She specializes in Behcet's, so hoping she has some insight. I'm doing ok. Just try to take one day at a time and be thankful for prednisone. As much as I don't want to be on it, it helps me so much.

How long have you been dealing with this?

PollySunshine profile image
PollySunshine in reply to irose

I just read about Dr. Cailin Sibley at the OHSU Behcets department.

UKADMIN profile image
UKADMINPartnerBehcet's Syndrome Society

Do contact behcets.com for more info on support in your area in USA or behcetsdisease.org.uk for UK.

Not what you're looking for?

You may also like...

Recommendations London Neuro

Hi Can anyone recommend a Neurologist specialising in Behcet’s and neuro ophthalmology in or around...

Arthritis attacks?

Hi again Has anyone got attacks around the cervical area of the spine between shoulder blades and...

Pipp1 - Continuous stomach pain

Hi My daughter is suffering with a lot of symptons relating to Behcets, mouth and genital ulcers,...

What do the gential sores/lesions feel/look like (female)?

My symptoms all flared up hard core 3 months ago, at first they thought I had trench mouth so I was...

Help please!! Mass in perineum

Hi everyone, this is going to be a TMI post but at the end of may I got a bartholins abscess on the...