Daughter 12: At hospital at the minute they are... - Behçet's UK

Behçet's UK

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Daughter 12

shine78 profile image
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At hospital at the minute they are starting her on cyclophosphamide on Monday. She will have this treatment for 3 months.

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shine78
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AmandaMoseley profile image
AmandaMoseley

are they liasing with rob moots?

shine78 profile image
shine78 in reply to AmandaMoseley

I honestly don't know they have been liaising with loads of different people I cant remember all there names but they all do agree on using the drug

AmandaMoseley profile image
AmandaMoseley in reply to shine78

Ask Zoe - Rob Moots is at the Centre of Excellence in Liverpool and runs a clinic at Alderhey with Claire Pain.  Make sure that they have spoken to him. I am unimpressed with Sheffield Childrens and their understanding of Behcets 

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