I am sorry the weekend away did not happen - and I hope it will happen next year BUT I do know that there is still a great need for younger sufferers (and their parent's) to have time together to provide support and share knowledge.
I have a venue in the centre of Derby which will be available of the first Sunday in every month.
There are activities for every age of child/young person and plenty of comfortable chairs
I am happy to provide Tea Coffee cake - and even sandwiches - and details of local hotel's if people want to stay the night before.
Provided at least two families/young people come that that is fine and that is the only reason why you need to register an interest - I would hate anyone to come and only find me there to talk to!
It will start in October - all you need to know is to let me know on here that you are hoping to come although of course it is ALWAYS understood that the delightful companion known to us all as Behcets can make other plans at the last minute...
Post code and map will be provided!