When drs say well that's not my expertize. - Behçet's UK

Behçet's UK

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When drs say well that's not my expertize.

Dmartin138 profile image
2 Replies

Dont know it Europe or anywhere else is different than the United States because I have to see my rheumatologist by then when I'll ask a question sometimes she will say I dont know too much about hornones out have to make appointment with your endocrinologist. Does that anyone anyone else as well? I mean I have seen her for 8 years now and you would think shed study up on my results so we could talk all levels. Anyone else have this happen and find annoying?

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Dmartin138 profile image
Dmartin138
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2 Replies

Still happens in the UK too. My general practoner says I am not an expert on that or you will have to go and see that person. Thanks for that 2 hours out of my day for you to tell me this although I cannot complain I am grateful that I get health care. I just keep try and keep smiling.

Lorimin96 profile image
Lorimin96

I feel your frustration as I live in the USA and everyone is a specialist, my PC says well there's no test or cure for bechets but u could see a rumatlogist , which I have seen many and only one diagnosed and did gene testing with excersise but living in Boston having the best doctors they see I walk and talk fine but 3 rumatlogist don't agree I have an auto ammune disease, my advice to everyone not with a diagnosis never tell a doctor what you think you have just the symptoms you have, I was sent to a gyn for ulcers below and she says it must be herpies I get tested snd it's unable to be negative because to much bacteria? I never got a positive result and would think if it was herpies I would. I saw a foot doctor and stomic doctor for colon, neurologist for migrains, dermatologist for rashes. Ect, I wish there was 1 doctor that treats rare auto ammune and could connect every symptom. I had 2 doctor ask how do u know you have inflamation, or an auto immune I wanted to get up and walk out but then I thought about it if you never had a migraine you wouldn't know the difference between just a headach, if you have inflamation you just know you have it and some people including doctors have no clue how it feels to cope with being sick always and not realizing it till u have a good day. Hopefully someday there will be a blood test for bechets and 1 doctor to treat everything. Good luck

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