Erythromelalgia

[don5766]

Hi guys

Along with behcets I have been diagnosed with erythromelalgia another rare disorder! Burning of hands and feet! Just wondering if anyone else has it! Apparently my behcets has probably been the cause of it as it is secondary and not primary! Just waiting to see vascular specialist now! Hope everyone is well and thanks for any feed back x

[sian35]

Sorry to hear about this - sounds very unpleasant and painful. Hope docs can find some treatment for you.

I have started to get a funny burning feeling on soles of feet but not red all over or anything like that. I have not said anything about it - just assumed it was part of behcet's weird symptoms. Maybe I will mention it to drs and see what they say.

I have just stated with dry eys and dry mouth, probably secondary to behcets - so these things do seem to occur.

Best wishes

Sian

[Ponjo]

Hello, friend.

I have neuro-Behçet and had Behçet for many years, with a significant remission. But now I'm here 3 years ago with the problems of neuro. I'm being followed by a specialist imonulogia, and she commands the other specialties. After many experiments, this is the best way to control the advance of crises in the vascular area. I have also had these problems in the hands and feet and is secondary. A vasculitis, inflammation is everywhere.

Votes of good improvements because life is beautiful and it is we who give it out!

Ponjo