Hello there
As accurate information is so difficult to find for this rare Syndrome, I wanted to let you know about a book publishing in October - it can be ordered from Amazon and costs £14.95. It is a Q & A format with lots of useful stuff and info on symptoms and treatments and also includes a DVD with videos. Take a look
amazon.co.uk/Behcets-Diseas...
I hope you find this useful, best of luck to all with their treatment.