informative new book

Hello there

As accurate information is so difficult to find for this rare Syndrome, I wanted to let you know about a book publishing in October - it can be ordered from Amazon and costs £14.95. It is a Q & A format with lots of useful stuff and info on symptoms and treatments and also includes a DVD with videos. Take a look

I hope you find this useful, best of luck to all with their treatment.

3 Replies

  • Have put my order in!!



  • I have put my order in, too!

  • Hi, Thanks for the info, I'll be placing my

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