cause: I like several others have Cerebellar... - Ataxia UK

Ataxia UK

4,032 members4,570 posts

cause

Fifa profile image
FifaVolunteer
6 Replies

I like several others have Cerebellar ataxia. I'm not bothered about the cause because you can't change it. That said I have spoken to others who have the same condition and I find we were all premature. We have nothing else in common' even our symptoms are different,although we all have mobility problems.

I am interested to know if there are others with the condition who were premature. I don't intend using the information, as yet I'm not sure what I will do with it. i'm just curios.

Take care all of you

Fifa

Written by
Fifa profile image
Fifa
Volunteer
To view profiles and participate in discussions please or .
6 Replies

By premature do you mean that the condition has been there all along? If so then I now think that I have had cereballar ataxia since I was very young (although I'm not certain). Since I was young I have been a very clumsy and accident prone person. My symptoms of ataxia became apparent to me around three to four years ago. I found myself feeling quite dizzy at times and would stagger moreso towards my left side.

What I can remember was that I noticed this change shortly after I had an operation to have a hearing implant inserted into my head. I didn't connect this at the time but looking back on it, my thinking is that the operation could have been a trigger for my ataxia (not the cause) but I'm not very sure.

Fifa profile image
FifaVolunteer

Hello Iain

Thank you for your reply. For the purposes of the question premature means as a baby you came early. For example, take me, I was due on the 28/5 but was born on the 4/4,very premature.

Hope all is well with you.

Take care

Kind regards

Carol

HarryB profile image
HarryBAdministrator

Hi Fifa

I was not premature. I have not heard any link between prematurity and developing cerebellar ataxia but I will do some of my own research into it if that is OK?

Harriet

Litty profile image
Litty

For what it is worth, I was late!

Love Lit

Fifa profile image
FifaVolunteer

Hello HarryB

I don't mind at all.

Kind regards

Fifa

Fifa profile image
FifaVolunteer

Helllo Lit

I hadn't thought about being late. Trust you!!!

Take care

Kind regards

Carol

You may also like...

Do you think Cerebellar ataxia of unknown cause is a diagnosis?

do you consider cerebellar ataxia of unknown cause to be a diagnosis or do you think a person who...

Does ataxia cause digestive pr

I've got ataxia also taking HRT suffering whit belly pain and lots of burping wonder if its...

AOA2, anyone out there with same or parents of?

13 has the same condition and is undergoing genetic testing for confirmation. We have an older...

Sheffield and autoimmune treatment

big deal for me as having an MRI too, which again if told 'you have cerebellar ataxia' is it worth...

Ataxia changed my life for the better ! (Short Life Story)

to see: who really loves me; who really cares about me and who would have my back whether I have an...