cause: I like several others have Cerebellar... - Ataxia UK

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Fifa profile image
FifaVolunteer
6 Replies

I like several others have Cerebellar ataxia. I'm not bothered about the cause because you can't change it. That said I have spoken to others who have the same condition and I find we were all premature. We have nothing else in common' even our symptoms are different,although we all have mobility problems.

I am interested to know if there are others with the condition who were premature. I don't intend using the information, as yet I'm not sure what I will do with it. i'm just curios.

Take care all of you

Fifa

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Fifa
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6 Replies

By premature do you mean that the condition has been there all along? If so then I now think that I have had cereballar ataxia since I was very young (although I'm not certain). Since I was young I have been a very clumsy and accident prone person. My symptoms of ataxia became apparent to me around three to four years ago. I found myself feeling quite dizzy at times and would stagger moreso towards my left side.

What I can remember was that I noticed this change shortly after I had an operation to have a hearing implant inserted into my head. I didn't connect this at the time but looking back on it, my thinking is that the operation could have been a trigger for my ataxia (not the cause) but I'm not very sure.

Fifa profile image
FifaVolunteer

Hello Iain

Thank you for your reply. For the purposes of the question premature means as a baby you came early. For example, take me, I was due on the 28/5 but was born on the 4/4,very premature.

Hope all is well with you.

Take care

Kind regards

Carol

HarryB profile image
HarryBAdministrator

Hi Fifa

I was not premature. I have not heard any link between prematurity and developing cerebellar ataxia but I will do some of my own research into it if that is OK?

Harriet

Litty profile image
Litty

For what it is worth, I was late!

Love Lit

Fifa profile image
FifaVolunteer

Hello HarryB

I don't mind at all.

Kind regards

Fifa

Fifa profile image
FifaVolunteer

Helllo Lit

I hadn't thought about being late. Trust you!!!

Take care

Kind regards

Carol

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