Premature Senile Decay of the Cerebellum.

[Ant1]

Hello all, I'm rather new here...

I have Premature Senile Decay of the Cerebellum, only had it about two years and I'm 73 - heartily glad it's stayed away until now.

I've read a lot of posts here but I've seen no other mention of it, am I alone or does it have other names?

I just tell people I do it for the sympathy!

Best wishes to all: Ant

[Haddav]

Hi, my daughter has shrinkage of the cerebellum and still waiting for a confirmed diagnosis. What are your symptoms please as we can then ask her specialist about this. Many thanks.

[klazien]

I have ‘late onset cerebellum Ataxia’ and was told that it was called that by lack of knowing what else to call it. Maybe it is the same as what you have. I was 60 at the time and had been very fit till then. That was 11 years ago.

Even though it was indeed lucky that I had been fit till then, to put up with this in conjunction with the rest of the old age restrictions is not easy.

[2rayvon4 in reply to klazien]

How I agree with you! In 2014 I was told I had ataxia, which has now been classed as idiopathic sporadic ataxia - 'late onset', I imagine, as I will be 70 next month.

Ann

(2rayvon4)

[Ant1]

Sorry, "dementia" should of course say "Ataxia" but the tickbox didn't mean much at the time...

Regards Ant

[Ant1]

Hello Haddav and Klazien,

I'm in England but perhaps the different name reinforces the fact that diagnosis was, for me at least, just a box-ticking exercise - no disrespect to the neuro chappie. I felt that he was very good but still kind and human. Perhaps they all have their own names for the un-named?

I started several years ago, with hindsight, touching walls and hedges to tell my brain where my body was. Then I started to need a stick then a pair of walking poles. Now it's elbow crutches outside. I can still stagger, and I mean stagger a yard or two but I shouldn't!

Indoors I'm about to start using a stick, virtually all the falls I've had have been indoors either from not concentrating on my movements or because my reference point has moved, an unlocked door perhaps. Outdoors I use mobility scooters, an ordinary one for shopping, dogwalking etc and a self-folding Monarch Smarti for use on buses.

I find now that my speech is getting affected, my eyes likewise, and possibly my hearing but that may be age but it seems variable which belies the age theory. It's been fascinating to read about all this but I don't look into the future, sufficient unto the day! Sufficient, mainly, that I keep waking up!

I was about to leave my body for research or whatever but apparently brain research has different requirements so I'm investigating that too.

Regards Ant