tell me your story

[Kar71]

I have spinocerebellar ataxia type 6

If there’s anyone who has this please share your begging symptoms.

I was diagnosed 11 odd years ago as my mum had it so I got tested and it came back that I had it.

my arms and legs are getting weaker I feel I am losing muscle ? I work as a mental health carer so I’m very busy but I’m finding I am a lot more tired than usual and don’t have the energy like I used to. I feel like I forget a lot more and have trouble saying or finding wordings . Hanging washing out exhausts my arms and I get pains in my legs my body aches . I try to exercise when I have time and that. Find hard as the pain is crap so I give up , but I know I need to use my muscles . I don’t sleep well I suffer with headaches . I’m going through the menopause so I struggle to differentiate between the two . Please shed me some light on this. Thank you x 😊