Irritable

[7151]

I find i loose patiance and get agressive anyone else expérience this i blow my top realy quickly Its worrying especialy for my friends and family

[weegiz12345]

I can get this I find I haven’t got as much patience either, I’m 63, sometimes I have to take a deep breath and count to 10 you’re not alone

Louise xx

[7151 in reply to weegiz12345]

Thankyou its nice to not be alone xx

[weegiz12345 in reply to 7151]

Don’t worry you’re never alone xx

[RFC1CANVAS]

yep, I get the same. Got me it is out of frustration because I cannot do the things I used to. This is compounded by my family, out of best intentions, seem to focus on what I can’t do rather than helping do what I can do and get some feeling of accomplishment.

It’s hard to step back from those emotions.

One day I’ll get it right.

Keep positive.

[Lidldidl]

Hi 7151 👋🏻 I think it’s understandable to be honest, frustration of not being able to live life as it was & fear of the future - it’s an awful lot to handle. Maybe blowing your top is not a bad thing? (For you - not the family though) I’ve tried talking it through with my family & explaining, but it’s hard to see how hurt they are my outbursts & withdrawn times.

It’s tough as hell, but you’re not alone in this xx

[Tallguy101]

No not at all, I find I'm more patient with others because of my ataxia. Before I would occasionally say things before thinking now I'm more considered.

[PatsyIpswich]

Yes I can very much relate to that ..

[7151]

I used to be à very easy going personne somtimes i find mydelf being very Hurtfull to people i love x

[Barry25 in reply to 7151]

i’m glad to get answers reading these comments, I thought it was just me, so pleased it effects others as well

[Barry25 in reply to Barry25]

well not pleased it effects others but pleased its. not just me

[SCA3gettingup]

I am feeling exactly as You. My patiente decrease and I hurt My beloved ones

[7151]

Hi yes its awful i Hurt thé ones i love thé most especialy my daughter who.already feels guilty that she dosent do enough ! I screamed at a very good friend thé other day and told her to get out of my house all very upsetting i m pleased i m not alone x

[7151 in reply to 7151]

Thankyou everyone for taking thé time to reply this rare illness is full of mystérieuxPleased i m not alone

But very much alone when i try to explain to thé people i Hurt 🙄

[Stagger]

I lose patients and get irritable quite often. I have idiopathic cerebellar ataxia with CCAS ( Cerebellar Cognitive Affective Syndrome). This affects my emotions on both extremes. I can be very calm and maybe slow to respond one day. Another day I can become extremely emotionally sad (crying like a child) or be very irritable and become very angry.

[Sherena]

I can relate, it's a combination of being perimenopausal and dealing with sca 3. Thankfully I am extreme introvert and therefore don't really socialise. I find I am more irritable when am tired and I don't sleep well at all.Maybe have a conversation with your friends and family - kind like an apology in advance, explain that it's not them. Also when I realised that I've over reacted I normally try to do some self reflection to get to the root of what caused the reaction - oftentimes it has nothing to do with immediate situation and once that is resolved then I react a lot differently.

[Nottscounty1862]

yes I do. I get irritable and snap at people very quickly. Thought it was just me.

[paul456]

What makes me annoyed is all my close family became consultants in scr 6 in about 3 weeks after I was diagnosed. There’s me thinking it took years to be a consultant neurologist 😂.

You take care and stay strong.

[7151]

Thankyou Paul xx