I was talking with my wife about this forum & we found that reply’s & advice given & support gained is quicker, more useful than going to physio, IT even neurologist. You don’t have to wait for letters or phone calls, all the advice & help is here. It may not seem that but I’m grateful. Reading from experiencing patients/chats etc you find out in a couple of days than what you would than 3-6 months in the NHS….or medical care. So I would like to compliment & thank for the useful advice/ guidance & support that’s given. KEEP going & Thank you.
Happy : I was talking with my wife about this... - Ataxia UK
Happy
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Really glad you are finding it beneficial , you of course are right between all of the people on this site there is a wealth of real experience and we don’t even charge much 😂.
Be happy my friend because that’s the cure.
lol I’m not insulting the nhs, as they are very hard working & are good but it’s my bad encounters & serious mistakes that is my issues. But when you have a forum that have really good & nice positive attitudes with there own disabilities with priceless advice and help it really does help no matter how little they make it a pleasure to read & makes things positive in many ways. Appreciate it Thank you
Physio. I had a visit (one of many) the other month. I found that with the way my condition has progressed, it was OK a few years ago, but not now. I have turned any further appointments down (but thats me). As regards speech, I know what I want to say, but find it hard to articulate, so much so, I got rid of my phone a few months ago, and will only talk to people if its really necessary. I have given up on a few things, as have social anxiety problems now. I just have my very patient and understanding partner and my love of Hi Fi and music