Hi everyone i saw my neurologue the other day ..i m going to be hospitalisé for 2 days to do a lumber puncture anyone know anything about this test ?! They still dont know what form of antaxia i have ! Maybe celebrellar antaxia
Thankyou for any témoignage 🙂
🙂I haven’t actually had this done myself..my MRI showed Cerebellar Atrophy.
Lumbar puncture (spinal tap). In some cases of ataxia, this may be a helpful test. A needle is inserted into the lower back (lumbar region) between two lumbar bones (vertebrae) to remove a small sample of cerebrospinal fluid. The fluid, which surrounds and protects your brain and spinal cord, is sent to a laboratory for testing.
Yes I've had a few without any positive results. It's important to remain lying down for 24 hours and sip water through a straw otherwise you'll have severe headache. X
Thats probably why they want to keep me in hospital Not possible for me to lay down at home i live alone x
Good luck good to rule out things. I’ve had a few and would agree it’s important to stay still definitely the last one as an appointment was much better than the others in an emergency situation. Be sure to take it easy afterwards.
This is used to rule things out usually. It can however indicate autoimmune issues that can cause CA and be treated. This is rare.
Thankyou for your positive answer Would nt that be Nice if it could be cured
I ll have to look CA up
Anycase you have answered and i Thankyou you my question that no one else had thé answer for 🥰
Well i am going down hill very quikely ..i must have had this antaxia for years but they only started looking into it in 2019
Since last septembre i topple backwards and forwads ended up 2 times in hospital xxx
I have had a few but I have never had to stay in hospital. The whole thing lasts 20 minutes but you should remain still they use the fluid to test for infection and autoimmune diseases that could be causing the ataxia. In my case however they were all negative and my autoimmune ataxia was diagnosed by stomach biopsy and blood test in Sheffield, London where I live didn’t do the test and referred me to Sheffield as you are allowed two options on the NHS.
I would do a blood test first to rule out all the common SCAs
Blood (genetic) testing really ought to be done first. It is much less intrusive and I should imagine cheaper than two days of hospitalisation.
Unless you need an anaesthetic for the lumbar puncture, which most people do not, unless they suffer with severe tremors, hospitalisation should not be necessary.
Hi i m fully covered médicale no cost to stay at thé hospital i trust my neurologue Apparently thé liquide they take out of my back comes from thé brain so all this makes scence now ..we have exellent médical care in France ..i guess im lucky
2 days with food and à médical taxi there and back dosent cost me a penny
Then again i ve payed into système having lived and worked in France for over40 years
Have à Nice day
Thanks for your help x
I am sorry, I was mentioning the cost to the health services, not to you personally. We are extremely lucky to have a fantastic National Health Service in the UK as well!
Well i do have to pay what we call a top up insurance but its worth it for thé health service in France
Hi i ve just explained that yes indeed in France they conside it nessasaire to be hospitalised
myself and my mother both had lumber punctures to rule out m.s. over 20+years ago it’s a process of elimination .
Hi just to let you know i m finaly going into hospital for thé lumber puncture thursday at 3 pm i will stay thé night it will be friday morning with pain killers intrduced into my viens in my hand plus à mask ( also with something to calm me and à hypnotise if nessasaire ..i will then need to stay laying down stay à seconde night be allowed home if i can prouve i wont be alone ( thats fine my daughter will come and look after me ..no driving allowed for 1 day ..well lots of you was saying à in and out all over job ,well thats not thé case in French hospital s Take care eveyone xx
Beth had a lumbar puncture, I was sick thinking about it but in the event she was brilliant. She had the whole team singing George Ezra 'Shotgun' whilst it was happening and manged to turn an anxiety ridden moment into a really funny one!
Brilliant 🙂
Hi as planed i stayed in hospital 2 days they let me out as long as i had someone at home to look after me ..with the pain killers ànd à sédatifs mask plus à lovely team it went realy well they did lots of other tests again so well see ! I now wait to see thé neurologue be Nice to know what out of thé 8 forms i have ..i know it dont make any différentes its something we live with and could be worse thanks for all your posive help...keep strong ...keep moving xx
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