hello my Ataxian friends, how are you all doing, ok I hope….. an update on myself.
I had cataracts removed from both eyes a couple of years ago, my vision now is amazing, and the colors are beautiful, but the new lenses are long distance only, you don’t get a choice, so I still wear glasses for reading and close body hobbies.
My mobility has become worse, I have changed my electric scooter for a powered wheelchair, but it cost me nothing, Because I am an RAF Veteran, the wheelchair is on permanant loan from the RAF benevolent fund…….. I walk around indoors, still holding onto furniture, door frames, walls etc….. but am inclined to walk indoor only when I need too.
I have a through the floor lift, from my dining room, up to the box room, that was paid for and installed by my local council….. they also changed my bathroom into a wet room with a walk in shower, with a wall fitted chair.
Although I have the symptoms for Ataxia, but not diagnosed, and a multitude of other ongoing medical problems, I remain upbeat and positive, still enjoy listening to all kinds of music(mostly60s music) reading, watching television, getting out and about as much as possible, having the odd pint at a local pub…….. life goes on, and I am determined to live life to the full as much as possible…… but above all of this, I have a loving wife who is also my unpaid carer….. be thankful if you have someone in your life who cares about you.
Wishing you all the best for the future.
Take care and stay safe.
Don😀❤️🤣🤣🤣🤣🤣🤣
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Veteran250
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That's a great positive post, Don. My ex partner should see that, but he can't/won't, through blindness. He left me in a meltdown over two weeks ago and has been in hospital ever since. He didn't appreciate me at all.
Good to hear from you Don. Sounds much same as me apart from cataracts. So pleased you had that done. We now have WAV with ramp and hoist too. My Husband has Parkinsons and both in early 80s. Enjoying garden at the moment. Patsy x
Hello veteran 250 it’s pleasing to hear local councils are stepping up to help with home adaptations so folk can stay in their homes. Sorry your mobility has deteriorated but by the sound of you you’ll take it in your stride no pun intended 😮I would also agree that anyone who is a caregiver paid or unpaid are a special breed of people selfless in duty. I like yourself have a loving wife affectionately know as the long haired general and without her love and support my situation would be unbearable.
The is no exercise better for the heart than reaching down to lift someone up.
Good to hear... or more specifically ... read your thoughts and experiences. Your messages always give me a lift. I'm in my ... Oh let me think ... my tenth year after the ataxia diagnosis. I can still perilously totter down the garden but thats just about all. For most of those years I've been able to keep my spirits up but recently I've become rather depressed. Good to read your posts. Keep them up!
Hi Don its lovely to read your post. So pleased the Council has come good positive to read. Just plodding on myself diagnosed with episodic ataxia, have medication which keeps me some what stable. My husband is very good and we laugh a lot about my walking backwards episodes, speech rambling, and various other happenings that occur daily. Keep going Don have laughs, take time to look at our amazing birds and wildlife enjoy take care pacitto xx
I have a wheelchair which lurks within Garage, because there are too many hills in Wales! Usually I use a rollator, or around the garden I can make do with a stick.
Glad you got your cataracts done, Makes an amazing difference, doesn't it? Like you, the implants are for distance, which suits me fine.
So for the first time, I had to have reading glasses. They are a flaming nuisance; I either forget them, or I hang them round my neck on a lanyard, which doesn't do 'em any good! Time to go to Specsavers!
Hello, hello, hello! Yahooooooooooo! So glad you are still here and enjoying life, great new s that you have all those things done to your house to help you. The sun is shining and I am thinking of you zooming around....................................
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