CBD for SCA

[Tommi_]

I have been testing half a year now with CBD-oil.

Normally I've been using 20-25% but now I bought Cibdol's 40%, no exprience yet. Get's a bit costly...

For my SCA7/ 43 rep the CBD works really well. After 3-4 days after the 1ml dose I don't need my sticks at all. The muscle control and also the mood gets much better. But after 5-6 days the good times are over. Although, I am, in fact, better now than last summer.

I was in Barcelona and was hoping to find good CBD sources. Not at all, it was very much ripoff business. Cibdol seems to be ok. Any advice is the most welcome.

[skyasll]

CBD-oil is very expensive and it is inappropriate to take it without clear evidence that it is an effective precursor to SCA. May I ask where you read that CBD is helpful for SCA. If so, please share it.

[Tommi_ in reply to skyasll]

I said I have been testing it myself for 8-9 months and the cure is almost dramatic. I have not read at all.

[skyasll in reply to Tommi_]

The main ingredient of CBD oil is cannabidiol, and perhaps you will find lower prices for products searching for cannabidiol.

[majajefferies]

cbdbrothers.comWe used this company to treat our son’s epilepsy, it helped when we used the mid strength mixed type (stronger had less effect).

[wobblybee in reply to majajefferies]

🙂 You’re probably fully aware of this..

At the moment there is one cannabis-based medicine that has been approved for treating epilepsy in the UK, called Epidyolex. It contains pure CBD.

Epidyolex is available on the NHS as a treatment option for some people with Dravet syndrome and Lennox-Gastaut syndrome. These are rare types of epilepsy that are difficult to treat.

🤔 I’ve looked at epilepsy.org.uk and it may be possible for children with other types of Epilepsy to be prescribed....ask your son’s Neurologist about Clinical Trials

If you have been refused Epidyolex but feel you or your child meet the criteria to receive it, our campaigns team would like to hear from you. Contact them at [e-mail]

[Tommi_]

This is really interesting. In UK it's called Epidyolex, do you know the company that makes it?

I will talk to my neurologist in Helsinki.