Hello I’ve not posted fo a while .Has anyone tri... - Ataxia UK

Ataxia UK

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Hello I’ve not posted fo a while .Has anyone tried acupuncture for spinal cerabella attaxia and did it help with muscle spasms .

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Hello I’ve not posted for a while but can anyone let me know if thay have tried acupuncture and did it help. I have spinal cerabella attaxia Since 2006. X

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Pekingese2
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lorrainewalls profile image
lorrainewalls

Hi there,

About 6 months after I was diagnosed with Cerebellar Ataxia, I tried acupuncture as no medical treatment was offered (This was in 1999). I continued to have acupuncture until lockdown. It helped me to cope with my progressive condition and I always felt re-energised both mentally an physically. However, as you are probably aware, there is NO CURE (well not yet).

So far as muscle spasms are concerned, I do get dystonia occasionally, nearly always at night and it can be very painful. The neurologist suggested a small dose of BACLOFEN at night which I did try but I am not convinced it was of any help, plus I had some strange side effects.

Acupuncture is rarely available on the NHS and can be very expensive done privately, certainly in the long term. By all means try acupuncture, it may help but do make sure he/she/ they are registered with the British Acupuncture Council. If done by a qualified, experienced acupuncturist it is painless. Lorraine

Pekingese2 profile image
Pekingese2

Oh thank you for replying I’m going to try it Ike let you know x

PatsyIpswich profile image
PatsyIpswich

Yes it helped general health but not balance.

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