Troriluzole : A new drug.: biohavenpharma.com... - Ataxia UK

Ataxia UK

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Troriluzole : A new drug.

Collinhucn profile image
12 Replies

biohavenpharma.com/science-...

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Collinhucn profile image
Collinhucn
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pinjem profile image
pinjem

Page doesn't exist. What is it proposed to treat?

Collinhucn profile image
Collinhucn in reply topinjem

Sorry about that. Please try this one:

clarahealth.com/studies/tro...

Collinhucn profile image
Collinhucn in reply topinjem

This new drug claims to cure SCA (type 1, 2, 3, 7, or 10 ),Alzheimer's Disease,and some other neutral diseases. It is now in stage III in clinical trial.

wobblybee profile image
wobblybee

🤔 This Trial is being conducted in the US, but has halted because of the current situation.

Collinhucn profile image
Collinhucn in reply towobblybee

Thank you wobblybee. It is a new drug in the US that I bumped into the internet. I am sorry it has halted by Covid-19.

Sunny8088 profile image
Sunny8088 in reply towobblybee

Its going on , they ship it home, I am on it

wobblybee profile image
wobblybee in reply toSunny8088

👍🙂

For anyone interested see clinicaltrials.gov NCT03701399

HarryB profile image
HarryBAdministrator

Dear all

Please note the recruitment of patients for this study is within the United States.

Harriet

Collinhucn profile image
Collinhucn in reply toHarryB

Thanks for pointting out.

sonofapeter profile image
sonofapeter

Not to be a negative Nancy, but this is the second time around for the same drug by this company. They simply rebranded it and changed the trial time to much longer. This was the results from the first trial with Trigriluzole and a link to individuals involved in the first study. biohavenpharma.com/investor...

livingwithataxia.org/t/bioh...

It's rather interesting I find that on a National Ataxia Foundation Facebook page, people involved in the second study with Troriluzole all seemed to suspect that they received the placebo. I just happened to point out that maybe, since they all seemed to think that they had received the placebo, it just doesn't work? Hoping not, but being realistic. I put my hopes more on gene therapy, like uniqure.com/gene-therapy/ca... or triplettx.com/.

God bless you all. :)

Collinhucn profile image
Collinhucn in reply tosonofapeter

Hi,sonofapeter:

Thank you for pointing out. Like you, I am more on gene therapy side.

sonofapeter profile image
sonofapeter

Interesting.......practicalneurology.com/news...

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