EU study on ataxia

[isabelalfaiate]

I am one of the patients in this study. I saw the neurolgist today who said my gym is definitely helping. I passed all the tests, in fact did very well, my memmory is good and they told me that I am the same as four years ago, have not lost any faculty and I take no medicine, just vimtanin E and magnesium for cramps. I fee, great and believe a positive attitude is responsible for this. I crochet all day.

[anihol]

Hi in glad things are holding up for you. Can you tell me what ataxia you have please?

[isabelalfaiate in reply to anihol]

I have SCA 3 Machado Joseph disease

[Adribegon in reply to isabelalfaiate]

I have SCA 3 too; I’m from México and i have 36 years, wath can I do? I take citalopram 40 mg, do you Know something else??? Please help

[isabelalfaiate in reply to Adribegon]

Hi Adribegon, I take no medicine besides supplements - Vitamins E, D3, C and magnesium Ergymag which includes various vitamins B. Besides that I saw an homepath and take his medicine and do shiatsu. I am 66, was diagnosed at 60 but showed symptoms from 52. In 2009 was told to get a wheelchair, but I am still walking around unaided, except arm in arm with someone when walking outdoors. Inside the house, I have no problem. I do exercise at a gym everyday and found that has helped more than fisiotherapy. My SCA3 was late onset. I live in Portugal and a neurolgist from the university hospital follows me, but I find they monitor what is happening only and do all sorts of tests and have only prescribed vitamin E.

[isabelalfaiate in reply to Adribegon]

In Brazil they seem to know alot more see Ataxias -tratamento com homeopatia on Facebook , I am not sure you understand portuguese, I imagine being spanbish you may be able to understand

[PatsyIpswich]

very encouraging .. what strength magnesium do you take?

[isabelalfaiate in reply to PatsyIpswich]

I take Ergymag from nutergia 3 per day, no cramps

[february]

Congratulations! So encouraging to know how much exercise and a positve attitude helps ataxia! May you enjoy continued success! My best to you..., ;o)

[ww-wibblywobbly]

Well done Isabel, congratulations on your success. Keep up the hard work (exercises) and positive attitude ❤️

[Veteran250 in reply to ww-wibblywobbly]

Hi Isabel, its good to hear from you, keep doing what you are doing. 😀😘

[Litty]

Well done xx

[Arlo20]

Well done x

[Sherena]

That gives me tremendous hope. I really want to join a gym but financially it is noy possible - I make enough to just cover my bills. I am self employed.