CONCORD (Coordinated Care of Rare Diseases) is a research study which looks at how care of people with rare diseases is coordinated in the UK and how patients, families and healthcare professionals who treat rare diseases would like care to be coordinated. The study is funded by the National Institute for Health Research and is being led by researchers at University College London, in collaboration with NHS Institutions and charitable partners. This study has received ethical approval by the London-Surrey Borders Research ethics committee (Project ID number: 19-LO-0250).
We are currently recruiting healthcare professionals (health care, social care and voluntary sector), commissioners (national or local) and patient group representatives to take part in a one-to-one interview (up to 60 minutes - in person, over the phone or over skype). The purpose of the interviews are to explore preferences for different models of care coordination. For more information or to take part, please contact: holly.walton@ucl.ac.uk | (Tel: 02031083068)
For more information about the CONCORD study, please see: geneticalliance.org.uk/our-...
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Maybe this is relevant to you....Neta (read to the end)
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