I can't tell you how chuffed I am to have received so many responses. It has made me realise how beneficial it is belonging to a forum like this and how a quick word from someone can make all the difference - thanks chaps.
We are also patients of Dr Giunti and my husband has had lots of fairly invasive tests. We are still no wiser why he is constantly losing weight in spite of a highly calorific diet. I've never made so many cakes!
Like others, I know it must be so difficult to acknowledge that things will never be the same but I live in hope that once he accepts his limitations, the easier life will be.
Very best of luck to you all and the multitude of challenges you face every day.
Thanks once again for your words of wisdom and encouragement.