Glare

[Jacqui-A]

I ‘walked’ into town today because I was told there was something on and one of the stall holders glared at me, when I looked at him he looked the other way so I gave him a card which explains this decease and told him how hurtful it is to be stared at. Let’s hope another person has been educated and now knows that you never judge a book by it’s cover.

[Veteran250]

Well posted Jacqui, today was Armed Forces Day in the Uk, Military Personnel, Veterans, and Cadets all on parade with bands playing and flags flying.....maybe we should all carry the cards, where did you get them??

😀👍🌞🌞🌞🌹

[Jacqui-A in reply to Veteran250]

Hi Don, The cards came through the post from Ataxia U.K. but they only sent 10 so I had 50 printed. Take care Jacqui

[ConfusedAtaxian]

I always carry a. card. I think they are designing new ones. Well done you! 🤗

[Hidden]

Those that are use to being ok with your normal are blind to your Ataxia. The things about you that keeps a close friend can be a joy, then there's that popular syndrome we would like to join so we can be noticed too. If many could be blind to your physical health, knowledge would be easier to consume. That's great you had the courage to enjoy life.

[pinjem]

What a horrible person! If ever have an unpleasant reaction from anyone, I either make a point of talking to them, even 'Good morning' and making sure they respond or I think how very miserable their lives must be to make them behave so very badly. It is very hurtful, good for you for engaging with him, adults really should know better. Wonder if he has overwhelming problems too, or just ignorance?

[ddmagee1]

Staring and showing an attitude, toward others, who have obvious physical limitations, is a bad thing to encounter, especially when one is afflicted, with an ailment, like Ataxia, and other debilitating ailments, of course, that limits their ability, to ambulate.

[february]

I honestly don't care if people stare at me (maybe it's due to my age, as I'm 65 years young...,ha!). I use a cane (stick) or rollator so maybe they're looking at that. The way I see it's 'better safe then sorry', as I don't want to fall! Good for you for carrying your cards and educating that rude person about ataxia!My best to you...,

[lucymockingjay]

We've also had loads.of problems with the way people can treat us. I'm in a wheelchair full time and when catching buses I've had people say that people like me shouldn't be allowed on buses, because it's takes up the space for push chairs! I've been told I shouldn't use my chair when I've clearly been drinking, lol that one makes me laugh and I point out out that's only likely to be the case.in the evening hehehehe. The look on their face is priceless then! I was frequently told when my kids.were younger they should be taken off me because I was drunk, so my son used to say his mummy was poorly, not drunk even when very little.

More recently my problems have been with health professionals tryIng to shove me into care homes though. They even tried saying at one point that even though they accept I can make my own decisions, they can still convene a panel and override that if they think my safety is at risk and forced to go into a nursing home. I find that a really scary thought , that you can have full cognitive ability but still be threatened with losing your independence and choosing how and where to live your life.Also that social services can constantly hold that threat over you every time you ask for more care, just threaten you with that instead as it is the cheaper option!

Even they don't understand disability it would seem and constantly judge a book by its cover, my ot had a huge argument with my daughter recently telling her that it sounded more Like she had fybro rather than ataxia because she had done a one day course on it!

Chloe's ataxia is genetically confirmed so there is no doubt at all , it is just health care in The South West is a bit of a joke!

I think I need to get some more cards though to enlighten people on the symptoms a bit more!

Hugs every one

Love Lucy