From Merseyside?: Is there anyone with wih... - Ataxia UK

Ataxia UK

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From Merseyside?

flawlesssFayx profile image
6 Replies

Is there anyone with wih Friedreich''s Ataxia over 50 in the area, please?

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flawlesssFayx profile image
flawlesssFayx
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6 Replies
Cuds profile image
Cuds

Hi - I live in Chester....is that close enough?

flawlesssFayx profile image
flawlesssFayx in reply to Cuds

Yes. lovely part of the country! there doesn't seem to be any 1 nearer. I have 1 friend in Accrington, Vicky Hoyle, shes 51. I am 56, was diagnosed at age b4 the test. Had blood test in 2016, was positive.

Cuds profile image
Cuds in reply to flawlesssFayx

there are 2 support groups in Merseyside, one on the Wirral and one for Liverpool. They have get togethers and might be good for you to contact a branch and see what is going on? Liverpool contact is Michelle Burke and e-mail is mich-1985@hotmail.co.uk

the Wirral one is Mary Howarth and her e-mail is maryhowarth14@hotmail.co.uk

this information is on the Ataxia UK website - worth visiting if you haven't already!

flawlesssFayx profile image
flawlesssFayx in reply to Cuds

Im in Newton--le -Willows,, near Warrnngton. Err, Which 1 is nearer?

Cuds profile image
Cuds in reply to flawlesssFayx

Not sure as I don't know where they meet. Give them both a ring and go from there! :)

ConfusedAtaxian profile image
ConfusedAtaxian

Sorry, Suffolk and have late onset Cerebellar Ataxia.

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