Ataxia medication: Hi is anyone on a medication... - Ataxia UK

Ataxia UK

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Ataxia medication

boxerattims profile image
4 Replies

Hi is anyone on a medication called CellCept mycophenolate mofeti?

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boxerattims
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golfingsue profile image
golfingsue

hi i am about to start on Mycophenolate so will be interested if others have taken it too

2rayvon4 profile image
2rayvon4 in reply to golfingsue

Do you go to the Sheffield Ataxia Centre by any chance? I see Prof Hadjivassiliou, and he suggested I try Mycophenolate ( don't know if there are different types ). However, I haven't as, being an immunosuppressant, I feared 'other' health problems. As I am 71, I hope to manage without it. I don't know how much it's used to treat Ataxia. The leaflet I was given to read was produced by Arthritis Research, as the drug is used to treat rheumatoid arthritis. The decision, of course, is yours. If you do try it, I hope it helps. I'd be grateful if you'd let me know how you get on.

Best Wishes,

2rayvon4

golfingsue profile image
golfingsue in reply to 2rayvon4

Thanks Yes I am at Sheffield & yes I have just started 4 days ago.he has given it to me for stiff persons syndrome so I am hoping.

in reply to golfingsue

Hi! Intersting about the SPS. Ive got it or rather a form of it and gluten ataxia. PM me so we can chat . Amd yes, im at Sheffield and was offered M but atbthe moment the other other meds are stabilising things.

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