https://youtu.be/TasMOQ2FKKk

[Litty]

The cerebellar cognitive affective/Schmahmann syndrome

You probably know all about this already - in which case apologies, but my other half got very excited and says it explains a lot about me.

Basically if you have ataxia you have varying degrees of this too and it is explained well here

youtu.be/TasMOQ2FKKk(Not working as expected?)

x

[woody1404]

I too recognise myself in the description of Cerebellar Cognitive disorders.

This is an excellent item and can be used to illustrate the symptoms of Ataxia for the many occasions I am asked about it.

I run a Support Group in NW Surrey and I will be forwarding the link to all of our group with the suggestion that they then forward it to their own friends & family.

Many thanks for sharing Litty.

Derek

[Litty in reply to woody1404]

Really pleased - my husband has sent it to all my carers x

[wozzer45]

Hi Litty,

This all sounds quite familiar too!!! I don't know how many times I'd dinged our car - have just replaced it and trying to be ultra careful with new one!!! Also the word finding - which I was putting down to fatigue and emotionally - cry at the drop of a hat - my kids find it very funny as cry at slightest thing - we have movie night every Saturday and half the fun for them is how long will it take for mammy to cry!!!

Liz

[Litty]

Lol - so could be me!! Kids begged me to stop driving and I cry at nothing. My son is s** and films me regularly when watching tv - (my reaction GOT Red Wedding v famous on Youtube) x

[february]

Dear Litty, Thank you for sharing the video on cerebellar cognitive dysfunction! I have ataxia due to late onset Niemann Pick C1 disease and really never knew why I had many cognitive dysfunctions, as named in the video. I always blamed them on having ataxia, but it's very enlightening to finally have a true answer! Thanks again..., ;o)

[Litty]

Good - he explains it well x

[sunvox]

Tragically Dr Schmahmann was the one connection I made that I thought would make a difference but he has taken a new job with the NAF and is no longer interested in studying “supplements”. I believe the low hanging fruit belongs to preventing the next generation from suffering but there is no glory in that.

[Litty in reply to sunvox]

Ah well xx

[wibblywobbly]

thanks for that. Verifies what I thought, but has never been confirmed. I seem to have many of these problems. Do you know how I can copy this link to send it to my family please

xx

[Litty in reply to wibblywobbly]

Lol - until Ian told me I did not realise - I do now!!

I think you just use

'youtube.com/watch?v=TasMOQ2...(Not working as expected?) x