I am new here.. : I am 31 years old man. I... - Ataxia UK

Ataxia UK

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I am new here..

Skumar0778 profile image
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I am 31 years old man. I Suffered lithium toxicity which led to Polyradiculoneuropathy.. Named... Acute Inflammatory Demyelinating Polyradiculoneuropathy.. in September to November 2013...During this period I was in coma for about 2 months.. Also gone through dialysis as there was also acute kidney failure and ventilation as I was not able to breathe. I came to consciousness after 2 months and released from the hospital but my whole body was paralysed.. I had then continuous physiotherapy for 4 months and my body weight recovered from 48 kg to 70 kg and was able to walk with the help of walker.. But even after 3 years after the release from the hospital i couldn't walk without support as i feel lack of balance and coordination. And then went to another doctor and hospital where after Brain CT SCAN it was found that i have Diffuse cerebellar atrophy too.. Which is also referred as cerebellar ataxia.

Doctor told me that there is no cure of this disease.. I don't know what to do as i was not financially independent and also family's financial condition is also not so good..

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Litty profile image
Litty

Welcome!

That all sounds horrid but well done so far.

Sorry I do not know about financial help. Maybe ask the Ataxia UK lot?? x

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