I am new here.. : I am 31 years old man. I... - Ataxia UK

Ataxia UK

4,021 members4,557 posts

I am new here..

Skumar0778 profile image
1 Reply

I am 31 years old man. I Suffered lithium toxicity which led to Polyradiculoneuropathy.. Named... Acute Inflammatory Demyelinating Polyradiculoneuropathy.. in September to November 2013...During this period I was in coma for about 2 months.. Also gone through dialysis as there was also acute kidney failure and ventilation as I was not able to breathe. I came to consciousness after 2 months and released from the hospital but my whole body was paralysed.. I had then continuous physiotherapy for 4 months and my body weight recovered from 48 kg to 70 kg and was able to walk with the help of walker.. But even after 3 years after the release from the hospital i couldn't walk without support as i feel lack of balance and coordination. And then went to another doctor and hospital where after Brain CT SCAN it was found that i have Diffuse cerebellar atrophy too.. Which is also referred as cerebellar ataxia.

Doctor told me that there is no cure of this disease.. I don't know what to do as i was not financially independent and also family's financial condition is also not so good..

Written by
Skumar0778 profile image
Skumar0778
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Litty profile image
Litty

Welcome!

That all sounds horrid but well done so far.

Sorry I do not know about financial help. Maybe ask the Ataxia UK lot?? x

You may also like...

I am going for the result genetic test tmr

decided to do the test after my bro also did the test. The result is releasing tmr and I feeling...

I am feeling really fed up!

For the last couple of months I am finally getting Physio and have found out that the muscle in my...

help I am scared of losing everything

new I had ataxia I became a joke I am 40 quite strong minded but even I had enough and walked now...

Hello all! I am new to this site but I wondered if I could have your help, its regarding Occupational Therapy for Ataxia?

older brother has Friedreich's Ataxia and just wanted to live as independently as possible, which...

New here- Canadian with Gluten Ataxia...

problems were due to an accident. But it is gluten ataxia. Question: If you avoid gluten, how long...