My experience with extreme tirdness: I have ataxia... - Ataxia UK

Ataxia UK

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My experience with extreme tirdness

Jobbo16 profile image
3 Replies

I have ataxia SCA1 I lost 18 stones in weight .I develop AF heart condition which was extremely painful until I had the operation. I finding now my hands r bent does anyone suffer from cracking bones.in extremely tired all the time any ideas how to fight this

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Jobbo16 profile image
Jobbo16
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Litty profile image
Litty

Hello there

I have SCA1 too and get so tired. I try to sleep about 1.5hrs during the day x

Maysan71 profile image
Maysan71 in reply toLitty

Hi i was also very tired and normally slept1-3 hours during day. I was to tired to walk or do anything. But last year i started the MM protocol and feel so much better in every aspect. My legs and joints used to crack a lot not now but i still get stiff i sit still or freeze. Look for Anthony Williams if u are interested!? There is no medication involved

Litty profile image
Litty in reply toMaysan71

Interesting - great if it helps you x

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