Friedrich's ataxia

[Cabena]

I was diagnosed 20years ago with late onset friedrich's ataxia. Interested to know how common this is.

[Tiggywinkles]

I was also diagnosed with late onset FA, my symptoms started in my mid 40's and it was confirmed by blood testing when I was 49. What age were you when it started? How are you now?

[Nigel-2112]

I was also diagnosed with late onset FA, my symptoms started in my mid 30's and it was confirmed by blood testing when I was 40. According to the stats it is around 1 per 50,000 or 20 per million with FA which means about 1,300 in the UK............. personally I think it is higher than that!

[maryrose46]

Hi Cabena

I was diagnosed in my early 20s, as was my sister( she's 8 years older than me) I'm now 51.

Mary

[D1DG3]

I was diagnosed with FA at 46 yrs with a blood test I am now 56. I was born with Pes Cavus in both feet and way back in my teens have always said ' my feet are too small to balance on (size 2)' and as a child had very achey tired legs put down to growing pains.