New to Ataxia

Hi my name is Sue in Jan 2016 my husband Paul who is 60 had a large bleed on the brain which left him with Cerebella ataxia. He spent 10 months in hospital still cannot walk independently.(uses frame plus one aldult) When tremors started first thought was Parkinson's then they said was ataxia it is managed with madapar still waiting to see movement specialist .Anyone out there with similar experience?

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  • Hi Sue

    Thank you for your post. I have cerebellar ataxia although I don't know the underlying cause yet. Although I am unable to identify with your own situation I thought you may find the following link helpful stroke.org.uk/resources/bal...

    Best wishes

    Harriet

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