Webcast for those who wish they were at the NAF Conference in San Antonio, Texas....

[SueMillman]

There are broadcasts from National Ataxia Foundation’s conference today at 15.00 – 18.00 and 19.00 to 20.00

.

Ataxia research updates are from 17.00 – 18.00 and 19.00 to 20.00 is on Safe Mobility Strategies; Proper Lifting/Transfers/Falls Prevention.

The weblink is ustream.tv/channel/sXJXK4asHL2

Sue

[isabelalfaiate]

Dear Sue,

When going to that link, I am unable to hear anything, however I am able to see the publicity for the conference, which I am sure must have been interesting. I did notice it is sponsored by pharmaceutical companies. I sincerely hope that the patients are more important than the profit.

I hope they come up with something that will help us to have a better quality of life in spite of ataxia.

Best regards

Isabel

[SueMillman Partner Ataxia UK]

Hi Isabel

I'm sorry you weren't able to get the link to work. I posted the publicity for it supplied by NAF.

Patient groups often attempt to get pharmaceutical sponsorship for things like their member or scientific conferences as they are so expensive to hold - NAF's conference is usually attended by around 600 people with ataxia, their friends and families! But there are ethical rules relating to what the pharma can pay for.

Ataxia UK wouldn't accept any funding which compromised our independence; but I have no embarrassment about taking their money as they have such a lot of it - all made from selling medicines to patients!

Best wishes

Sue