Experience of Ataxia post

[Frenchoak]

I read a previous post that someone else wrote about how it feels to have Ataxia.....I cannot find it now! Please can anyone point me in right direction I'd like to read it again! Sorry can't remember who by either! Thanks 🙃

[piglet3]

I think this was posted by wobblybee. It was entitled “how I describe my diagnosis of ataxia “ it was posted 3 years ago. I found it very accurate.

[Tomassina in reply to piglet3]

it was posted 5 years ago by ConfusedAtaxian and entitled

Ataxia - my description.

Hope you find it

[Telegraphist in reply to Tomassina]

I found it. Wonderful! Going to produce my own version as a homage.

[wobblybee]

🤔 I searched AtaxiaUK..and frustratingly couldn’t find a link to either ‘mentions’.

But I empathise in ‘dispute’ over diagnosis.

I was initially given a diagnosis of Epilepsy, and this muddied the waters for several years..until I started having falls.

🤔 I’ve had testing relating to my medical history and symptoms, all negative…and I have no family history but….I am enrolled for Whole Genome Sequencing, this may be offered to you.

[wobblybee]

🙂 Would you believe it….when I logged on this morning, just briefly I saw the post we may have been looking for.. it disappeared but …I had time to see it was linked to Practical Neurology.

🙂 This may not be the original post but..it does give a lot of information..

practicalneurology.com/arti...