Acupuncture.

[Iain_100]

Has anybody here tried acupuncture to combat their ataxia symptoms? I've just come across a Danish company, and they specifically mention being able to treat 80% of ataxia symptoms.

So I'm rather curious to know if anyone here has tried acupuncture - and if it was worthwhile.

Their Twitter account:

twitter.com/SCACrowdfunding

Thanks

Iain

[wobblybee]

Well Iain, it might work for some people, why not try it😊

Personally, I tried it for PMS. I'm not good with needles but I persevered😁

I wasn't keen when the therapist hit a bone....

Needless to say, I chickened out😕

I also tried boiling Chinese herbs for the same complaint (you don't need try them).

The smell was absolutely revolting, the family were less than complimentary and that

remedy also bit the dust!

I would try anything within reason. If you hear of replacement working cerebellums please post😉xB

[Iain_100 in reply to wobblybee]

A replacement working cerebellum would be good. You'll be the first to know - once I've had mine installed

Yes, I'm quite open to trying anything - just wanted to see if acupuncture was worthwhile before trying.

I'm like you with a fear of needles - had a lumbar puncture as a kid (meningitis - but not the really dangerous type) and in those days, nurses pinned you to a bed (presumably to stop a kid from wriggling) before jabbing a needle in your spine. So I wasn't really looking forward to having it done again (earlier this year) but persevered (some pain is worth enduring - even if just mental pain). As long as I don't actually see the needle (and remember not to hold my breath) I'm usually OK. I've travelled quite a bit, and have had countless jabs as a result. But for some reason it's OK when the sun is on your exotic horizon

So I reckon I'll be fine with acupuncture. Might have to keep my eyes closed though

Iain

[AutumnSwan in reply to wobblybee]

Hi. I’m new to this site so please bare with me if I do something wrong. How & where would one get a replacement for a good working cerebellum? Thank you.

Autumn Swan

[wobblybee in reply to AutumnSwan]

🙂 All of us would like a proper working Cerebellum, but sadly at the moment it just isn’t scientifically possible to repair or replace this organ. The Cerebellum cannot renew itself after Atrophy has occurred, and that’s why we experience Cerebellar Ataxia. Although it is possible that the brain itself can be ‘rewired’ to compensate for losses incurred due to damage to the Cerebellum. Patients are often referred to Neurophysiotherapists, Speech and Language Therapists and NeuroOpthalmologists who can assist with help and advice in coping with symptoms. In the US, you can find helpful information on ataxia.org

[AutumnSwan in reply to wobblybee]

Thank you. I was just responding to lain’s post bc I thought the same thing. I was thinking obviously lain knows something I don’t.

[wobblybee in reply to AutumnSwan]

🙂 Ok, I answered because your reply came to me. You must have clicked on ‘reply’ directly under my post 🙂

[AutumnSwan in reply to wobblybee]

Hi. Thank you for ur response. Was it lain that mentioned he was having a working cerebellum installed? Thank you.

[wobblybee in reply to AutumnSwan]

🙂 Read Iain’s post carefully, that remark wasn’t exactly a joke but it was something similar. He knew it wasn’t possible, but he would like one installed.. He didn’t mean he was literally going to have a working Cerebellum installed.

[AutumnSwan in reply to wobblybee]

Sorry I misunderstood! Thank you for clarifying that. Obviously, that went right over my head.

[Vion]

Hi, yes I have been having Acupuncture on my 5 session it comes with Chinese medicine which is a tea I boil it then drink before meals on a empty stomach. It seemed to work wonders after the first session felt really good but you must rest after to allow your nerves to reboot. Since having these sessions I have got worse with my symptoms hence why I asked about tremors. I have gained my strength as was unable to lift my legs above my head(hubby happy) lol😜but it does take time and since my Dr is pretty unhelpful I will finish the course and medicine. Please also note it's not cheap at £45 each and £70 for 2 weeks of tea but you can't put a price on your health plus this guy includes a massage and cupping so I get the full hour plus extras. Hubby also gets an hour free chilling drinking coffee whilst waiting for me.😊

[youngbutold]

I ve had accupuncture before I was diagnosed with cerebellar Ataxia and now have accupuncture every six weeks . I have found it beneficial but I'm not sure what the difference would be if I stopped . Most of the time I hardly notice the needles going in, occasionally there is a momentary stab of pain but it only last a very short time.

[february]

Dear Lain, I tried acupuncture, but had to pay out-of-pocket for it (wasn't covered by my insurance) so only did five session, as it cost $90 (I live in the US) per session. I think it helped some and would have helped more if I had continued to go. Definitely worth trying, as you may find it beneficial. Also, I didn't find it painful, as the needles are ultra-thin! I'd also like to hear about a replacement working cerebellum, so please keep me in the loop...,ha! If you decide to go the acupuncture route, I sincerely hope it helps you! ;o)

[nigelrheath]

In the hands of a skilled acupuncturist I'm sure it will help. The body's energy pathways can easily get blocked.

I used a finger pressure variant and something called kinesiology when practising as a therapist. It was very successful and very respectful of the patient.

Do give it a go and let us know how you get on.

Nigel

[Sisters-in-law]

I'll ask my winderful acupuncturist what she thinks. (Warwickshire)