Vitamin e

[jaffa12]

Has anyone with severe ataxia symptoms been told they have low vitamin e levels and has vitamin e helped symptoms. When I was diagnosed vitamin e was normal but now is low.

[Stanleyclan]

I have read about a type of Ataxia linked to vitamin e.........I guess it can't hurt. I am dosing my partner up on B vitamins and Q10 as I read this can alleviate symptoms. I may have to add Vitamin E to the list now...

[Ginger1]

I am currently taking vitamin e in liquid form for 3 months following a new blood test (via Prof Hadjivasilliu in Sheffield). As l also had normal levels when diagnosed back in 2003. Why does it alter? Is it not absorbed in Ataxia patients?

It seems to be helping my balance & cramp in legs, as research has shown me that low vit e can have an adverse effect on some symptoms. Although I do know too much can be harmful (overdose). As for cramp, I've been told that tonic water (quinine) & bananas (potassium) can help.

Anyway, I also take a raft of other medicines & 'over the counter' vitamins partly on recommendation. These include CoQ10, vitamin B complex etc to try & help myself.

I often wonder what I'd be like if I didn't exercise, eat healthily and take vitamins.

Ataxia won't beat me. I do all I can to help myself. I do try & stay positive too.

Sorry for rambling. I do hope the Vitamin E helps other symptoms too such as my nystagmus. Time will tell.

Keep positive.

[jaffa12 in reply to Ginger1]

Yes I too am taking vit e in liquid form. How long have you been taking it for before you noticed an improvement in your balance?

[Ginger1]

I don't honestly know but perhaps 3 weeks or so.