Volunteers with SCA6 needed for Oxford research ... - Ataxia UK

Ataxia UK

4,032 members4,571 posts

Volunteers with SCA6 needed for Oxford research study

AdeDP profile image
3 Replies

Researchers at the University of Oxford are currently looking for people with SCA6 to take part in a research study about how easy/hard it is to learn new motor skills. The basic criteria for taking part are that you:

-- have SCA6

-- are aged between 40-75

-- can use a joystick with your right hand

-- have no tremor in your right hand

More info, including contact details, here: tinyurl.com/ovy8v2b

Written by
AdeDP profile image
AdeDP
To view profiles and participate in discussions please or .
3 Replies

Hello, always interested in research and helping in any way. Not sure how useful I can be as I live in Australia? My family are all based in the UK and we do visit usually at least once a year.

I am 50 years old, was diagnosed with SCA6 approx 4 years ago after my father was diagnosed. I am still relatively unaffected by the problem.

Cheers M

HarryB profile image
HarryBAdministrator

Hi Marina

I think the researchers would probably want to see you in their lab. What a shame you live in Australia! It might be worth contacting them though to see whether you could combine your annual visit to the UK with going to see them.

Harriet

AdeDP profile image
AdeDP

Hi Marina

I've just heard from one of the researchers, and they would indeed want to see people in their lab in Oxford, but they don't have any problem per se with people from outside the UK. It may not be possible with the current study as I think the data collection stage is due to end in June or July but they will apparently have future SCA6 studies in the medium term and so it's definitely worth getting in touch (contact details in the link above) so they can let you know about any future opportunities.

Ade

You may also like...

Join a remote Study for SCA1. SCA2. SCA3. or SCA6

A new remote study from the Harding Lab at Monash University aims to better understand how different

SCA6 and speech difficulties

I have SCA6 with plenty of wobbles and swallowing/speech difficulties. People have problems...

SCA6 Tremors in hands

to me. The tremor in my hands I believe is Intention tremor, also known as cerebellar tremor and it...

SCA6 Ataxia

confirmed as carrying the gene for SCA6. He has balance and fine motor skills problem (writing &...

A chance to take part in genetics research

If you want to take part, you'll need to hurry as the researchers are hoping to take blood samples...