Hi all, think I am after a bit of moral support and any advice from parents of teens really or maybe just needing to offload.
My nearly 13 year old son has been asthmatic pretty much all his life, had taken him the the GP several times before he had an analphylactic allergic reaction at 9 months old which got him into consultant led care. I think he was admitted to hospital around 50 times over the following 2 years and for a while they thought CF was a possibility as we struggled to get things under control.
By the time he was 4, things seemed to be stabalising, he was on daily combined ICS and LABA and montelukast and the admissions started to tail off. WE spent the next couple of years under consultant led care while doses were changed and things monitored but when he was about 8 we were transferred back out to primary led care and although a few attacks a year required trips to hospital we seemed to be managing relatively well.
th last couple of years have gone back downhill with us really struggling to keep on top of things. February 2017 he had a horrible flare up which he was on oral steroids for but not responding to as he normally would, We arrived at A&E and his SPO2 was low 80's even after 48 hours on oral steroids and all his normal meds. It was an awful couple of days on constant oxygen alongside steroids etc and they diagnosed pneumonia and discharged him when what in hindsight I think was still a really poorly condition. since then we have struggled to get things under controll.
He had so much time off school this past winter due to his chest and at the beginning of the year they upped his meds again and referred back to the specialist.
He was taken off his combination inhaler and is now on Flixotide 250 (2 puffs twice a day), Formotorol (12mg twice daily) and montelukast 10. We were back to his specialist yesterday and his lung function test showed a small improvement but still "classic of chronic, poorly controlled asthma". He has all the normal allergies (pet hair, tree & grass pollen, dust mite) so advised to go back to daily antihistamine as well.
He is really good about taking his preventative meds but think his age is making him conscious of his 'condition' and feel that sometimes he holds off on taking his reliever when he needs it - not sure if this is because he is just too busy being a 12 year old boy or if he doesn't like his peers to him 'needing it'?? It really worries me as I can sometimes see and hear how much he is struggling yet resisting using his medication.
His specialist is amazing and had 'words' with him about how important it is to keep on top of things but worry that when I am not there he is putting himself at unnecessary risk, allowing his breathing to get worse before doing something about it.
Really hope that the slight improvement is his lung function test is the start of a trend but aware that his asthma is normally at it's best at this time of year so not holding my breath for this winter just yet!
Know that if things don't get under control it's going to be daily oral steroids and not sure how I feel about that!
Sorry, think this was an offload but any advice/words of wisdom gratefully received.