Firstly, let me wish you all a very Happy New Year and I hope everyone has an enjoyable time tonight.
Not sure where to start with my continuing asthma story. I have been having an exacerbation for the last 7 weeks due to a viral cough caught from my DH. He still has a cough after nearly 9 weeks but it is finally becoming less troublesome!
Have had 2 courses of pred one 30mg for 6 days and another a week later which I am in the process of tapering off, currently on 2mg. My symptoms came back when I cut down to 10mg although to be honest the cough and breathlessness never really went nor the feeling of mucus in the throat. Currently on seretide 250 2x2 day and ventolin. The docs have thrown everything at me montelukast,carbonistiene,omoprazole, diazapam for anxiety,phenegan to help sleep,course of fluxanasole for thrush,three different antibiotics clarythromycin,
doxycycline and now a four week(on week 3) of supporttive azythromycin, changed my inhaler twice once to Flutiform and also Symbicort changed back because neither was as effective as seretide. Most of the above I have been told to stop taking because it did not appear to work.
The docs now seem at a complete loss as nothing seems to work although they have not tried me on further steriods. They seem reluctant to up the dose although I do understand why as I react very badly to them. I think they think I am a neurotic middle age women hence the diazapam(which I didn't take) I am only anxious because I can't breathe. Been to A and E once but I don't think I was taken seriously as I don't wheeze and my sats where OK and the paramedics said no nebs as I did not wheeze didn't seem to matter that I couldn't breathe.
I am still breathless everyday,still have a cough, at night especially, I am using my blue all the time and am frankly frustrated and exhausted. I have had very little sleep in the last few weeks what with the pred and now coughing all night. Trying to get the medical profession to understand is seriously depressing to be honest. Any words of wisdom on how to approach this would be much appreciated. How to deal with docs that don't seem to understand and how to deal personally with such a long exacerbation as this has never happened to me before.Thank you.